A Place where parents of autistic adults can share their experiences with other that need support and encouragement.
I'm a parent of an autistic adult. My son, Nathaniel, was diagnosed around 3 years of age (he's now in his 30's), but as I look over some family movies (see March 30, 2011 post) I can see that he displayed many of the 10 signs of autism well before then.
His mother and I had only one thing in mind. What do we do?? In the early 80's there was little we could find about autism (no internet - what a lifesaver now!). We had his immediate needs to worry about. Was there a cure? Did he require medication? Childhood education had not yet come to mind. But with time, we needed to find out what resources were available around us.
Planning usually comes late for parents with autistic kids. We (well his mother and I) worried about his immediate needs and not the future. When Nathaniel reached 18, life as an adult posed many questions.
I hope that this can be a place where parents with autistic adults and children can communicate with those of us who have dealt with autistic adults. Yes, there are books and magazine articles about what to expect, and legal advice, but I have yet to find a place where experienced parents can share these experiences, give advice, and help parents of young children cope with the future of their child.

6 comments:
So sorry for your loss! I haven't read your blog before and I just came across it now on the Autism Blogs Directory, and I wanted to express my sympathy. I wish I knew something better to say.
Angel, thank you for your kind words of sympathy. This is a very painful time for me and Nathaniel's mother.
This morning I was looking for some information on adults with autism and came across this blog. I am so sorry to hear of your loss. I wish you peace in the coming months.
Hi Dave. I too just saw this blog today - months after Nathaniel's passing. I am so sorry that you lost Nathaniel. My adult son (21) sounds very similar to Nathaniel and I too have him at home with me. He has many health problems - mostly connected w/ his CVID. I've completely understand your conclusion that you don't regret giving Nathaniel that medication - quality of life is one thing I too focus on for my son. It is the one thing I wish I could better understand how to give him. I've had to make decisions about medications for my son too and balance the good/bad. While I've often thought that no matter what, I have to outlive my son (like your family, I think an institution is out of the question), my mind then goes to realizing how awful it would be to lose my son and have to go through that grief. At the same time, I worry what would happen to him if I preceded him in death. So I don't know what to hope for. But I do know that it would be a terrible blow to me to lose my son. HOpefully Nathaniel is in a place where his physical body no longer creates obstacles and suffering for him. Best wishes. Maura
Hi, I am so sorry for your loss. I can't imagine what you are going through right now. My prayers are with you, I am actually a final year at university and I lost my autistic childhood best friend to cancer on May 21st 2015, it's been a few months and I am still struggling to come to terms with losing her, she was 20 years old, didn't make it to her 21st birthday or mine for that matter. Because of it, I decided to create a project this year at university dedicated to technology and autism because of her, there isn't a day that goes by when I don't think about her or miss her. I hope that you are somewhat coping ok. I would love to speak to any parent or carers of autistic adults as I want to learn more from them. I would appreciate if some could fill out a small survey for my project: https://www.surveymonkey.co.uk/r/8VSPJYB I thank every one of you for filling it out.
My prayers are with you!
Audrey
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